Alliance Ltd (CDA) is committed to protecting the privacy of individuals.
There are occasions
where CDA collects personal information, including sensitive health
information, from individuals in order to fulfil its roles of providing
support, awareness and advocacy for those Australians diagnosed with a rare or
less common cancer. CDA complies with the National Privacy Principles set out
in the Privacy Act 1988.
personal information and health information
CDA collects personal
information about its members, Governing Committee members, advocates, senior
consumer representatives, consumer representatives, staff and potential staff,
stakeholders and other individuals who from time to time contact CDA for advice
or participate in CDA activities.
The information may
include both personal information (such as name, contact details and membership
data) and, in some cases, health information about an individual. For example,
health information may be collected where the individual wishes to provide this
to support an application for practical assistance to be provided by CDA.
information is collected with the consent of the individual, and where
possible, directly from the individual themselves. At the time of collection
individuals are informed about why the information is being collected, how it
will be used and whom it may be passed on to.
At times, CDA may
collect personal information from a source other than the individual (for
example, when it is given to CDA by a third party). CDA will, as soon as
practical after the time of collection, inform the individual that the
information has been collected, how it will be used and whom it may be passed
on to. If the information is not required, or the individual does not wish it
to be retained, it will be removed from CDA records.
Use and disclosure
of personal information
held by CDA will only be used or disclosed for the purpose it was originally
collected or for a directly related secondary purpose if the person would
reasonably expect this. For example, CDA may wish to contact an individual to
seek feedback on an CDA activity they were involved in. Personal information
will not be used or disclosed for any other purposes without the consent of the
individual or unless required by law.
In addition, any
disclosure of personal information to third parties (which may include for
example government agencies that oversee a particular committee or contract
staff) is subject to strict confidentiality agreements between CDA and the
CDA maintains hard
copy files in a physically locked and secure environment and electronic data is
password protected. The secure (members only) area on the website is also
password protected. The CDA computer system is protected by a firewall to
statistical data about visits to the website including the number of hits per
day, the most commonly downloaded files, how many visitors are return visitors,
the average time spent on each page, the number of visits each individual makes
and their relative activity on the site. The IP address and/or domain name of
that is stored on the individuals hard-drive when they visit the website. If the
individual returns to the website it indicates whether they have been there
before. This information is used for statistical purposes only in order to
assess and improve the CDA website.
identifiable information is collected if an individual chooses to provide this,
for example, by responding via email to one of the contacts provided.
CDA does not pass on
to any third parties personal information collected on its website without the
consent of the individual or unless required by law.
Access to, update and
correction of information held by CDA
Individuals are able
to access personal information held about them and amend it if it is incorrect
by making a request in writing to the Director.
Further information on
CDA privacy practices
Any questions or
directed to the CDA Office, c/- 6/21 Garners Avenue, Marrickville, NSW, 2037.
Date adopted: January